I'm not sure why I thought this would be the end of my journey - a perfect harmony of data points that would lead me to become a normal human being once again. It started out as if everything was happening in tandem like the parting of the sea, but no, not quite that easy. … Continue reading Listening to my body – Part 2 (B sides)
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and … Continue reading Listening to my body – part 2
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want … Continue reading Listening to my body – Part 1
How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests … Continue reading My medical records could be a best-seller
What I want to say to all the future women I have always been a big believer that everything happens for a reason. Even now, as I decide which pain medication to use for the degree of suffering I'm in, I still feel as though my grander purpose in life is to educate other women … Continue reading Everything happens for a reason, right?
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost … Continue reading Leaning on your spoonie support system
Lupron Therapy for Endometriosis I am utterly frustrated with myself because leading up to this blog article I have been able to convey information with an unbiased perspective, articulate both negative and positive outcomes of research, and have educated those who are less informed than I am. But this next article I have to write, … Continue reading I tried to be nice
Why we need to listen to our bowel symptomsSo many young women have approached me about endometriosis - and its related symptoms - to help determine if they have the disease. Because of their age, the vast majority have been told by their doctors that it is likely they have endometriosis but it has not … Continue reading Periods and Poop
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated … Continue reading The Reuleaux of my health
Back in 2012 when I had my first surgery to diagnose and treat endometriosis, my surgeon was able to ablate the lesions from my Fallopian tubes, but he was not comfortable working with the lesions on my bladder. For five years these implants continued to grow and spread, until my recent surgery in 2018 where … Continue reading Is it rare or medium rare?