I'm not sure why I thought this would be the end of my journey - a perfect harmony of data points that would lead me to become a normal human being once again. It started out as if everything was happening in tandem like the parting of the sea, but no, not quite that easy. … Continue reading Listening to my body – Part 2 (B sides)
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and … Continue reading Listening to my body – part 2
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want … Continue reading Listening to my body – Part 1
How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests … Continue reading My medical records could be a best-seller
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost … Continue reading Leaning on your spoonie support system
The Ulcerative Colitis Journey between week 6 and 8 of my Entyvio infusionsBeing on biologics is a love-hate relationship. When the infusion goes in there is this dread of 'what symptoms will I feel this time?'. I end up feeling this dull ache in my belly (even when I prepare by taking ibuprofen and gallons … Continue reading Putting Humpty Dumpty back together again
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated … Continue reading The Reuleaux of my health
The battles of submitting your fecal calprotectin test When I was diagnosed with Ulcerative Colitis almost 8 months ago now, I met my GI for the first time. She and her team were the ones to perform the colonoscopy that would reveal my diagnosis as well as the particulars about the severity of the disease. … Continue reading What the poop?
Working on you, when you are ready I refuse to be called a millennial and in the grand scheme of things I dont think Im that stubborn. But I have noticed a trend in my life: that I can only do things when I am ready. For instance, when I was 12 years old my … Continue reading Dont tell me what to do
The Support Network of Spoonies It has been 23 days of constant (chronic pain) and sadly I dont see a light at the end of the tunnel yet. I am trying my very best to live, and breathe and be positive but some days are better than others. To say the least I have been … Continue reading My new sistas!