I'm not sure why I thought this would be the end of my journey - a perfect harmony of data points that would lead me to become a normal human being once again. It started out as if everything was happening in tandem like the parting of the sea, but no, not quite that easy. … Continue reading Listening to my body – Part 2 (B sides)
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and … Continue reading Listening to my body – part 2
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want … Continue reading Listening to my body – Part 1
How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests … Continue reading My medical records could be a best-seller
To all those out there who are listening for a second there are a few reminders I need to tell you; While this holiday you want me to join you in the adventures, to be honest, I'll only be able to endure a few. I wake up in the morning feeling pretty achy and … Continue reading A spoonie Holiday Poem
Do you know someone with an autoimmune disease? Are you unsure what to get them for the holidays? Many of us autoimmune sufferers chat on social media almost every day about things that have worked for us - either therapeutically or mentally. Sometimes its as easy as a smell or a feeling. To help you … Continue reading An Autoimmune Gift List
What I want to say to all the future women I have always been a big believer that everything happens for a reason. Even now, as I decide which pain medication to use for the degree of suffering I'm in, I still feel as though my grander purpose in life is to educate other women … Continue reading Everything happens for a reason, right?
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost … Continue reading Leaning on your spoonie support system
Alright everyone, you gotta hear me out about this Keto Coffee.... My friend KRISTI is looking for 5 models to try the KETO COFFEE It’s non GMO and all you would have to do is substitute it for your morning coffee for 90 days! This coffee burns fat, fuels your brain so you can focus … Continue reading Keto Coffee – Promotion on now!
Lupron Therapy for Endometriosis I am utterly frustrated with myself because leading up to this blog article I have been able to convey information with an unbiased perspective, articulate both negative and positive outcomes of research, and have educated those who are less informed than I am. But this next article I have to write, … Continue reading I tried to be nice