As I navigate this journey I realize that there are so many people out there who are trying to navigate the same waters. So, I wanted to take a step back and share how I was diagnosed with thoracic/diaphragmatic endometriosis in case there are others who need this right now. I had an ablation in…
We all say it, right? I know my body. I know when something is wrong. I know that something is suspiciously right. When you are sick 99% of the time, you know how your body feels with every sway and every stumble, and every new stimulus. You know all the different kinds of pain: from…
For those of you who are still on the edge of their seat waiting to hear about what’s been happening with my endo journey, here goes. To recap, back in February I asked to see my Gyn because Orilissa was eliciting dark suicidal thoughts (not tendencies, thank goodness). At that time they told me to…
I was angry that "I wouldn't know" was an acceptable answer to an emergency doctor who should have given me more than half a second to understand my endometriosis. I was mad. And yet, there was nothing I could do about it.
I got up to pee in the middle of the night, the whole world dark around me. I sat there, relishing in the mere moment where my mind and body were disillusioned by the fact that I was half asleep and too withdrawn to feel the pain. But as my body started waking up I…
I don't know if anyone reads blogs anymore; certainly with Instagram and Twitter taking the main stage for social media. But, to me this is the only place I can fully capture the emotions that I endure throughout these new stages of my journey. I'm struggling with the words though because things are not adding…
Some would say I have been dealt a shitty hand in health. And those who know me would likely tell you I have a fairly positive predisposition no matter what gets thrown at me. There is not much by way of my medical journey that gets me mad. Upset, yes, but mad... not that often.…
One of the messages that I try to convey to my readers is that you MUST listen to your body. The other message - which is a mucher harder one to convey and certainly harder for my readers to follow through on - is to be your own advocate. Sometimes your physicians are not as…
Lately I have been able to channel my energy into my passion - an organization I am developing here in Ottawa, Canada - that allows me to put my advocacy into real action. While still in the early stages, the organization will turn into a pain center devoted to women with unresolved chronic pain, and…
A lot of my posts are drafted for days while I gather stats, and mull over the most politically correct way to convey information without sounding too bias or uninformed. But every once in a while I get the motivation to write something off the cuff; something that comes from my innermost emotions and bubbles…
Cramp My Style 