It all starts with not knowing. I mean think about when you first got your period. Aside from maybe the moms who they themselves had/have endometriosis, did anyone sit you down and tell you what to expect if you have painful periods? Did anyone give you a hotline to call if your cycle is out…
Excision Surgery Part 1: From The OR To My Bed
For those of you who are still on the edge of their seat waiting to hear about what’s been happening with my endo journey, here goes. To recap, back in February I asked to see my Gyn because Orilissa was eliciting dark suicidal thoughts (not tendencies, thank goodness). At that time they told me to…
Appendicitis? That’s a new one
I was angry that "I wouldn't know" was an acceptable answer to an emergency doctor who should have given me more than half a second to understand my endometriosis. I was mad. And yet, there was nothing I could do about it.
How I described pain as endometrial lesions spread throughout my body
I got up to pee in the middle of the night, the whole world dark around me. I sat there, relishing in the mere moment where my mind and body were disillusioned by the fact that I was half asleep and too withdrawn to feel the pain. But as my body started waking up I…
Is it rare or medium rare?
Back in 2012 when I had my first surgery to diagnose and treat endometriosis, my surgeon was able to ablate the lesions from my Fallopian tubes, but he was not comfortable working with the lesions on my bladder. For five years these implants continued to grow and spread, until my recent surgery in 2018 where…
Dont tell me what to do
Working on you, when you are ready I refuse to be called a millennial and in the grand scheme of things I dont think Im that stubborn. But I have noticed a trend in my life: that I can only do things when I am ready. For instance, when I was 12 years old my…
A pendulum between two diseases
Between Ulcerative Colitis and Endometriosis Where did I leave off? Oh yes. So I kept you hanging with the MRI results, and still no word from either doctor. On Monday morning I called to make an appointment with both my GI and my endo specialist. My GI had just returned from holidays and I was…
The Tango Between Two Diseases
Symptoms from Endometriosis and Ulcerative Colitis I feel like my endo and my UC have been doing the tango, competing for first prize. On days when my UC tends to be on the quiet side, my endo craves to steal the scene and do a few painful twirls on my diaphragm. Then they swap back…
Skipping my periods… the journey continued
Skipping Menstrual Periods Because of Endometrial Pain Has anyone else tried to explain to the world that pain meds (narcotics) actually cause you more pain? I have a strong understanding of medications and the mechanisms by which they take action, but I cant seem to wrap my head around this one. When I had my…
Creating a new ‘normal’
Changing Lifestyle Habits Due to Auto-Immune Disease I asked my mom the other day 'do you still believe everything happens for a reason?". She hesitated as the question came out of the blue. I asked again, 'do you think my endo is happening for a reason?' and like every optimistic mother would say she replied…
Cramp My Style 