It all starts with not knowing. I mean think about when you first got your period. Aside from maybe the moms who they themselves had/have endometriosis, did anyone sit you down and tell you what to expect if you have painful periods? Did anyone give you a hotline to call if your cycle is out… Continue reading Not knowing IS the battle
For those of you who are still on the edge of their seat waiting to hear about what’s been happening with my endo journey, here goes. To recap, back in February I asked to see my Gyn because Orilissa was eliciting dark suicidal thoughts (not tendencies, thank goodness). At that time they told me to… Continue reading Excision Surgery Part 1: From The OR To My Bed
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and… Continue reading Listening to my body – part 2
Back in 2012 when I had my first surgery to diagnose and treat endometriosis, my surgeon was able to ablate the lesions from my Fallopian tubes, but he was not comfortable working with the lesions on my bladder. For five years these implants continued to grow and spread, until my recent surgery in 2018 where… Continue reading Is it rare or medium rare?
A big decision whether to begin Lupron injections Im not sure why I thought I would be able to go to sleep tonight without writing this blog. So much has happened today and while in part this is to help others struggling through this big decision, this is also here to help me disseminate all… Continue reading To Lupron or not to Lupron
Why so many of us dont want to talk about Endometriosis I really hesitated in writing this article for fear that there might be backlash. But I have discovered recently that the more I am honest with my posts, the more people are speaking out. So with the risk of making some of you angry,… Continue reading What does my child have to do with this?
Between Ulcerative Colitis and Endometriosis Where did I leave off? Oh yes. So I kept you hanging with the MRI results, and still no word from either doctor. On Monday morning I called to make an appointment with both my GI and my endo specialist. My GI had just returned from holidays and I was… Continue reading A pendulum between two diseases
Undiagnosed abdominal pain I dont know how to begin this blog article other than to really start at the beginning of this journey. I thought for sure this wouldnt be worthy of an article as I just assumed this pain would go away through a fart, or a bowel movement, or maybe by way of… Continue reading My abdomen is not happy
Having multiple autoimmune diseases I was born a fantastically healthy baby, with no jaundice, asthma, or abnormalities that would see me through to adulthood. Until I was 14 and the much raved about menstrual periods started. I was overjoyed by the fact that I was part of the club that I didnt bother mentioning to… Continue reading My body is attacking itself
Symptoms from Endometriosis and Ulcerative Colitis I feel like my endo and my UC have been doing the tango, competing for first prize. On days when my UC tends to be on the quiet side, my endo craves to steal the scene and do a few painful twirls on my diaphragm. Then they swap back… Continue reading The Tango Between Two Diseases