A lot of my posts are drafted for days while I gather stats, and mull over the most politically correct way to convey information without sounding too bias or uninformed. But every once in a while I get the motivation to write something off the cuff; something that comes from my innermost emotions and bubbles … Continue reading Endometriosis versus Erectile Dysfunction – the numbers are staggering
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and … Continue reading Listening to my body – part 2
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want … Continue reading Listening to my body – Part 1
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost … Continue reading Leaning on your spoonie support system
Why we need to listen to our bowel symptomsSo many young women have approached me about endometriosis - and its related symptoms - to help determine if they have the disease. Because of their age, the vast majority have been told by their doctors that it is likely they have endometriosis but it has not … Continue reading Periods and Poop
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated … Continue reading The Reuleaux of my health
Why so many of us dont want to talk about Endometriosis I really hesitated in writing this article for fear that there might be backlash. But I have discovered recently that the more I am honest with my posts, the more people are speaking out. So with the risk of making some of you angry, … Continue reading What does my child have to do with this?
Working on you, when you are ready I refuse to be called a millennial and in the grand scheme of things I dont think Im that stubborn. But I have noticed a trend in my life: that I can only do things when I am ready. For instance, when I was 12 years old my … Continue reading Dont tell me what to do
The Support Network of Spoonies It has been 23 days of constant (chronic pain) and sadly I dont see a light at the end of the tunnel yet. I am trying my very best to live, and breathe and be positive but some days are better than others. To say the least I have been … Continue reading My new sistas!
Between Ulcerative Colitis and Endometriosis Where did I leave off? Oh yes. So I kept you hanging with the MRI results, and still no word from either doctor. On Monday morning I called to make an appointment with both my GI and my endo specialist. My GI had just returned from holidays and I was … Continue reading A pendulum between two diseases