It all starts with not knowing. I mean think about when you first got your period. Aside from maybe the moms who they themselves had/have endometriosis, did anyone sit you down and tell you what to expect if you have painful periods? Did anyone give you a hotline to call if your cycle is out… Continue reading Not knowing IS the battle
For those of you who are still on the edge of their seat waiting to hear about what’s been happening with my endo journey, here goes. To recap, back in February I asked to see my Gyn because Orilissa was eliciting dark suicidal thoughts (not tendencies, thank goodness). At that time they told me to… Continue reading Excision Surgery Part 1: From The OR To My Bed
I was angry that "I wouldn't know" was an acceptable answer to an emergency doctor who should have given me more than half a second to understand my endometriosis. I was mad. And yet, there was nothing I could do about it.
I got up to pee in the middle of the night, the whole world dark around me. I sat there, relishing in the mere moment where my mind and body were disillusioned by the fact that I was half asleep and too withdrawn to feel the pain. But as my body started waking up I… Continue reading How I described pain as endometrial lesions spread throughout my body
I don't know if anyone reads blogs anymore; certainly with Instagram and Twitter taking the main stage for social media. But, to me this is the only place I can fully capture the emotions that I endure throughout these new stages of my journey. I'm struggling with the words though because things are not adding… Continue reading The math doesn’t add up
Some would say I have been dealt a shitty hand in health. And those who know me would likely tell you I have a fairly positive predisposition no matter what gets thrown at me. There is not much by way of my medical journey that gets me mad. Upset, yes, but mad... not that often.… Continue reading I told them ‘morphine makes me worse’
One of the messages that I try to convey to my readers is that you MUST listen to your body. The other message - which is a mucher harder one to convey and certainly harder for my readers to follow through on - is to be your own advocate. Sometimes your physicians are not as… Continue reading Progestin making you bloat?
A lot of my posts are drafted for days while I gather stats, and mull over the most politically correct way to convey information without sounding too bias or uninformed. But every once in a while I get the motivation to write something off the cuff; something that comes from my innermost emotions and bubbles… Continue reading Endometriosis versus Erectile Dysfunction – the numbers are staggering
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and… Continue reading Listening to my body – part 2
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want… Continue reading Listening to my body – Part 1