I was able to hold it together for so long, with the endometriosis pain running my life, and the new diagnosis of an immune disease changing my life forever. I could hold it together while I was alone in Vancouver, but then I moved. I moved a day late because of a pancreatitis flare that… Continue reading The Chair Technique
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want… Continue reading Listening to my body – Part 1
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost… Continue reading Leaning on your spoonie support system
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated… Continue reading The Reuleaux of my health
The battles of submitting your fecal calprotectin test When I was diagnosed with Ulcerative Colitis almost 8 months ago now, I met my GI for the first time. She and her team were the ones to perform the colonoscopy that would reveal my diagnosis as well as the particulars about the severity of the disease.… Continue reading What the poop?
The Support Network of Spoonies It has been 23 days of constant (chronic pain) and sadly I dont see a light at the end of the tunnel yet. I am trying my very best to live, and breathe and be positive but some days are better than others. To say the least I have been… Continue reading My new sistas!
Between Ulcerative Colitis and Endometriosis Where did I leave off? Oh yes. So I kept you hanging with the MRI results, and still no word from either doctor. On Monday morning I called to make an appointment with both my GI and my endo specialist. My GI had just returned from holidays and I was… Continue reading A pendulum between two diseases
Undiagnosed abdominal pain I dont know how to begin this blog article other than to really start at the beginning of this journey. I thought for sure this wouldnt be worthy of an article as I just assumed this pain would go away through a fart, or a bowel movement, or maybe by way of… Continue reading My abdomen is not happy
Having multiple autoimmune diseases I was born a fantastically healthy baby, with no jaundice, asthma, or abnormalities that would see me through to adulthood. Until I was 14 and the much raved about menstrual periods started. I was overjoyed by the fact that I was part of the club that I didnt bother mentioning to… Continue reading My body is attacking itself
What happens when your biologic starts wearing off Those of us with autoimmune diseases know our bodies so well, and while we often cannot explain what we are feeling, we know something is up. Starting in February I had my three loading doses of Entyvio, and then experienced my first 8 week interval without the… Continue reading Where did my Entyvio go?