During the last year I have battled with my health, and as a result have battled with loving myself. When I look in the mirror I see scars from surgeries, cellulite from poor lymphatic systems, bloated belly from something Ive eaten or just a mere buildup of poop. I see swelling and tension. I see…
Real emotions are hard to ignore
It has taken me a few days to feel ready to write this blog. Mostly because, I think I was (and am) scared of describing the intense emotions I have been feeling over the last few weeks. Let me set the stage. In my last visit with Dr. S, he mentioned that the Visanne should…
Pain Survey
Cramp My Style Blog is expanding. The new initiative is focused on neutralizing gender-biased outcomes in pain treatment. On the onset, the goal will be to understand the challenges presented to women (and transgender) when confronting their healthcare practitioners about pain. Once this initial information has been collected, the focus will be to lobby for,…
Endo Toolkit – by Jessica Murnane
Endo sisters! If you have not yet heard of Jessica Murnane you must become familiar with her work immediately. Several years ago I came across her book 'One Part Plant' and bought it right away. I knew she was legit because the forward to her book was written by Lena Dunham!!!! Anyways, we've messaged back…
Listening to my body – Part 3
I would like to entitle this blog post "taking matters into my own hands" simply because the last month has been complete and utter HELL and I have not heard a peep from either doctor despite my concerns. I should preface this by saying I feel confident my doctors respect me so I don't think…
Listening to my body – Part 2 (B sides)
I'm not sure why I thought this would be the end of my journey - a perfect harmony of data points that would lead me to become a normal human being once again. It started out as if everything was happening in tandem like the parting of the sea, but no, not quite that easy.…
Listening to my body – part 2
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and…
Listening to my body – Part 1
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want…
My medical records could be a best-seller
How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests…
A spoonie Holiday Poem
To all those out there who are listening for a second there are a few reminders I need to tell you; While this holiday you want me to join you in the adventures, to be honest, I'll only be able to endure a few. I wake up in the morning feeling pretty achy and…
Cramp My Style 