I'm not sure why I thought this would be the end of my journey - a perfect harmony of data points that would lead me to become a normal human being once again. It started out as if everything was happening in tandem like the parting of the sea, but no, not quite that easy.…
Listening to my body – part 2
It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and…
Listening to my body – Part 1
With so many things happening to my body at once, I spend a great deal of time discerning between endometriosis pain, ulcerative colitis pain, anxiety, stress and just an off day. I run out of spoons a lot, and I am starting to look at my body with disdain - something I don't even want…
My medical records could be a best-seller
How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests…
A spoonie Holiday Poem
To all those out there who are listening for a second there are a few reminders I need to tell you; While this holiday you want me to join you in the adventures, to be honest, I'll only be able to endure a few. I wake up in the morning feeling pretty achy and…
An Autoimmune Gift List
Do you know someone with an autoimmune disease? Are you unsure what to get them for the holidays? Many of us autoimmune sufferers chat on social media almost every day about things that have worked for us - either therapeutically or mentally. Sometimes its as easy as a smell or a feeling. To help you…
Leaning on your spoonie support system
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost…
Periods and Poop
Why we need to listen to our bowel symptomsSo many young women have approached me about endometriosis - and its related symptoms - to help determine if they have the disease. Because of their age, the vast majority have been told by their doctors that it is likely they have endometriosis but it has not…
Putting Humpty Dumpty back together again
The Ulcerative Colitis Journey between week 6 and 8 of my Entyvio infusionsBeing on biologics is a love-hate relationship. When the infusion goes in there is this dread of 'what symptoms will I feel this time?'. I end up feeling this dull ache in my belly (even when I prepare by taking ibuprofen and gallons…
The Reuleaux of my health
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated…
Cramp My Style 