How do we get around the redundancy of the current triaging system?In the last 12 months alone I have amassed quite a thick file of medical records; from scans to diagnoses and undefined medical revelations. Add that to the 20 previous years of fruitless ultrasounds for burst cysts, a gallbladder removal, and many many tests… Continue reading My medical records could be a best-seller
To all those out there who are listening for a second there are a few reminders I need to tell you; While this holiday you want me to join you in the adventures, to be honest, I'll only be able to endure a few. I wake up in the morning feeling pretty achy and… Continue reading A spoonie Holiday Poem
Do you know someone with an autoimmune disease? Are you unsure what to get them for the holidays? Many of us autoimmune sufferers chat on social media almost every day about things that have worked for us - either therapeutically or mentally. Sometimes its as easy as a smell or a feeling. To help you… Continue reading An Autoimmune Gift List
Talking through endometriosis, ulcerative colitis, hysterectomies and more Rachel Egan, I am so delighted to be interviewing you today as I think your story, while complicated, will resonate as a whole – or in parts – to a lot of people. To give people a background, I was admitted to the Vancouver General Hospital almost… Continue reading Leaning on your spoonie support system
Why we need to listen to our bowel symptomsSo many young women have approached me about endometriosis - and its related symptoms - to help determine if they have the disease. Because of their age, the vast majority have been told by their doctors that it is likely they have endometriosis but it has not… Continue reading Periods and Poop
The Ulcerative Colitis Journey between week 6 and 8 of my Entyvio infusionsBeing on biologics is a love-hate relationship. When the infusion goes in there is this dread of 'what symptoms will I feel this time?'. I end up feeling this dull ache in my belly (even when I prepare by taking ibuprofen and gallons… Continue reading Putting Humpty Dumpty back together again
The meaning behind the logo For the last 20 years I have been trying to better understand and 'treat' my endometriosis with surgeries, birth control pills and pain medications. In the latter years I started to get wiser about the effects of nutrition and thus started to explore dietary solutions to mitigate the symptoms associated… Continue reading The Reuleaux of my health
The battles of submitting your fecal calprotectin test When I was diagnosed with Ulcerative Colitis almost 8 months ago now, I met my GI for the first time. She and her team were the ones to perform the colonoscopy that would reveal my diagnosis as well as the particulars about the severity of the disease.… Continue reading What the poop?
Working on you, when you are ready I refuse to be called a millennial and in the grand scheme of things I dont think Im that stubborn. But I have noticed a trend in my life: that I can only do things when I am ready. For instance, when I was 12 years old my… Continue reading Dont tell me what to do
The Support Network of Spoonies It has been 23 days of constant (chronic pain) and sadly I dont see a light at the end of the tunnel yet. I am trying my very best to live, and breathe and be positive but some days are better than others. To say the least I have been… Continue reading My new sistas!