It's hard to tell whether I will lose some followers on this one, just because of how complicated this journey is getting. So I left off on part 1 telling you that my 1) entyvio infusions were being moved from 8 weeks to every 4 weeks 2) Im due to meet my Endo specialist and… Continue reading Listening to my body – part 2
Tag: thoracic endometriosis
Is it rare or medium rare?
Back in 2012 when I had my first surgery to diagnose and treat endometriosis, my surgeon was able to ablate the lesions from my Fallopian tubes, but he was not comfortable working with the lesions on my bladder. For five years these implants continued to grow and spread, until my recent surgery in 2018 where… Continue reading Is it rare or medium rare?
Dont tell me what to do
Working on you, when you are ready I refuse to be called a millennial and in the grand scheme of things I dont think Im that stubborn. But I have noticed a trend in my life: that I can only do things when I am ready. For instance, when I was 12 years old my… Continue reading Dont tell me what to do
My abdomen is not happy
Undiagnosed abdominal pain I dont know how to begin this blog article other than to really start at the beginning of this journey. I thought for sure this wouldnt be worthy of an article as I just assumed this pain would go away through a fart, or a bowel movement, or maybe by way of… Continue reading My abdomen is not happy
Exhausted: Mentally but not physically
Mental exhaustion from endometrial excision surgery I havent been online in almost a month now, and for anyone who is keeping up with my journey I owe you a big update. 4 weeks ago I had an excision surgery to remove (not cauterize) endometrial lesions from anywhere they could find it. The surgery was very… Continue reading Exhausted: Mentally but not physically
Skipping my period – the journey
Skipping Menstrual Periods Because of Endometrial Pain After seeing an Endometriosis specialist in July, it was clear that my pain pathway was undeniable, and that the endometriosis was in fact back with a vengeance. Not only is my endo on both tubes, but the left tube is so sticky that is affecting my left sciatic… Continue reading Skipping my period – the journey
Thoracic Endo-pain confirmed
I have this belief that there are tons of people out there looking for answers about their endometriosis pain. And while the stats dont prove my belief that you are coming to my blog I still feel like I owe it to myself to continue to share my story. So here is my update from… Continue reading Thoracic Endo-pain confirmed
Thoracic endo – just a theory?
Hi ladies I apologize for not blogging in the last little while but it appears my body may have given up on me recently. Last month, during mid-cycle I was experiencing odd sternum pain. I was able to 'crack' it which doesn't make sense because its not a joint. In any case, this cycle has… Continue reading Thoracic endo – just a theory?
